Skye's 5th Birthday in Heaven ～Turning grief to good～
The Skyestrong Foundation hosted a conversation between Kim, Adam's mom, and Ami, Skye's mom. Both mothers have carried on the light of their children's legacies with Kim as the head of the Strong Like AK Foundation and Ami as the head of the Skyestrong Foundation. Please watch their conversation as they speak about NUT Carcinoma, motherhood, the battles that came with it, and "Turning grief to good".
Skye's 4th Birthday in Heaven ～Interview with Jennna Marie～
We had an incredible time celebrating Skye’s 4th heavenly birthday with a fantastic Zoom meeting featuring the inspiring Jenna Marie, a NUT carcinoma survivor! Listening to Jenna's remarkable journey and the amazing support from her family and friends during such a tough was truly a blessing. It warmed my heart to see Skye's Village come together on Zoom! Let’s keep this positive momentum going!
Skye's 3rd Birthday in Heaven ～Skye's Mural～
Join us in celebrating Skye’s 3rd heavenly birthday! We were thrilled to see so many people gathered around Skye’s radiant smile, beautifully showcased on the wall of her middle school choir building. A huge shoutout to WRMS for this stunning mural! Thank you all for being part of this unforgettable moment with Skyestrong, and a special thanks to Ms. Smith for honoring Skye in such a meaningful way. And let’s not forget those who supported Skyestrong foundation by enjoying delicious food from @pizzaguystudiocity!
No One Fights Alone Fundraiser
This Thanksgiving in 2022, we would like to thank the amazing community who have been supporting Skye's journey even after her transition to heaven.
The "No One Fights Alone" fundraiser was put together by Skye's good friends from middle school, Jett, Reid, and Nathan. It turned out so beautifully with so many people gathered in honor of Skye. We raised funds to help young warriors and their families; 2yo Nara(NUT Carcinoma fighter), 8yo Grady(NUT Carcinoma fighter), and 18yo Issac (Brain tumor fighter). Thank you for coming, donating, helping, and participating. We were able to send over $2000 to each of the family and it's all because of you!! We are truly grateful for your support.
Skye's 2nd Birthday in Heaven ～Blood Drive～
Skye’s 2nd year heavenly anniversary celebration was filled with laughter, hugs, and some tears. It was a beautiful celebration of her life with her friends and family. It also marked the end of our first Skyestrong blood drive. Thank you to all who donated blood and please remember to continue donating!! Hopefully, by next year, we will have our own blood drive running in honor of Skye.
To celebrate, we shared stories, made bracelets for other kids fighting cancer, and decorated pots to plant seeds that will grow as time passes. It was a beautiful time and we are so grateful for everyone who was able to attend and those who continue to support us.
Interveiw with Nagoya Pediatric Cancer Fund
The videos are all in Japanese (Sorry!) but Skye's mom had an interveiw with doctors from the Nagoya Pediatric Cancer Fund in Japan to talk about Skye's battle with NUT Carcinoma, the latest technology to detect rare cancers, and differences between the US and Japan on treatment for NUT Carcinoma
Interview with Joe
Thank you for watching our FB live with Joe Schwartz! “Surviving NUT carcinoma “ I pray and hope that this inspired you and it encouraged someone who are fighting cancer or has family members that are fighting cancer. My own family is also still dealing with cancer (my dad is currently fighting cancer !) and talking to Joe gave me so much hope. Yes cancer is terrible and I hate it, but there’s hope! There’s miracles! (In Jesus name! )
To bring awareness to this terrible cancer called NUT carcinoma and find a cure was Skye’s passion. I hope I made her proud and I will continue to make her legacy alive.
Hi Skye! Picture Winners!
We received so many lovely submissions from all over the world and it had been such a pleasure to see the impact Skye has made on people of all ages and nationalities.
It was so hard to decide but ultimately, we chose 5 pictures that we felt really captured the Skye Strong spirit. Thank you to everyone who submitted their photos! It was heartwarming to read your sweet messages and see the photos of the beautiful sky(e).
Congratulation, winners!
Linda Bengtson - Sendai, Japan
Mia Alfandari (16) - Hawaii
Zerrin (18) @zerrin_akpinar - Turkey
Leina Pimont (21) - California
Elizabeth Zaval (16) @liza.zaval - Los Angeles
